HealthTalkOnline presents video and textual resources describing peoples’ experiences of being invited to take part in clinical trials.
In this section of the site, 42 people from a wide range of backgrounds talking about why they took part in a trial, what information they needed, and what it was like for them. It also includes accounts from people who decided not to take part, and those who withdrew from a trial. Users can choose to browse findings illustrated by video and audio clips from the interviews under 26 topic headings, including:
Finding out about a trial :
- What are clinical trials and why do we need them?
- Different types of clinical trial
- Being asked about taking part in a trial
- Information and questions
Deciding whether to take part – risk and benefits:
- Reasons for wanting to take part – personal benefit
- Reasons for wanting to take part – helping medical science and other people
- Deciding not to take part
Being in a trial:
- Feelings about being allocated (randomised) to a treatment group
- Feelings about being in a placebo-controlled trial
- Blinded trials
At the end of a trial:
- Feelings when a trial ends
- Feedback of trial results
Users may also be interested in the HealthTalkOnline module about Clinical trials in children and young people.
Evaluation
Healthtalkonline is endorsed by NHS Evidence in its Process and Methods Manual as the source of evidence about patient and lay experience of health.
Further information is invited from the developers and users of this resource.